About this Blog
~Hi, my name is Courtney. I was a full time college student, starting to be a dancer, and used to work with kids part time, living on my own until my illness disabled me.
~I became sick in 2005. I created this blog in the summer of 2006 to record my "headache" diary and to see if anyone finds it interesting.
~12/2006 I lost my job then after, failed a year of college.
~2/2007 Dx Lyme Disease with Bartonella: prescribed 8 months of oral antibiotics. I'm not even sure if I ever had the Lyme Disease.
~11/2007 The doctor took me off medicines while I was still improving but not fully recovered.
~6/2008 Dx Chiari I Malformation by a neurosurgeon in Beverly Hills.
~8/2008 Decompression and Lamenectomy helped 80% of my problems.
~2/2009 Dx Hypermobility by an Orthopedic Surgeon/School Doc: Started PT, dancing, going to school and working.
~6/2009 Started working full time as an Infant-Toddler teacher, which requires lifting. Dancing part time, maybe I'll finish school eventually...lol
~12/2009 Dx Chronic Sinusitis: Stopped dancing due to constant infections.
~2/2010 Sinus Surgery & complication: Severe Epistaxis: Became severely anemic.
~3/2010: Dx Ehlers Danlos Syndrome: by Geneticist
~4/2011: Switched jobs, now work at a Pre-K teacher for 3 and 4 year olds. Less lifting!
~5/2011: Started PT and exercising again
jemsec specialty clinic
what are your thoughts? i'm considering it just to get all the testing and a good workup out of the way from someone who claims to be the leading doctor in lyme disease? but i live in california where he lives in north carolina.
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11 comments:
There are better places. If your willing to go to North Carolina, come to New York or Connecticut- this is where they see the most Lyme, this is where the best Lyme doctors are. Honestly, testing IS testing. Most Lyme doctors use the same labs. I just starting seeing Dr. Liegner, and had his whole workup-done, he worked me up as if I was a new patient, who had never had any testing done before- even though I have had every Lyme test and more- known to man.
The Jemsek Clinic uses Igenex..etc...as well, and I dont really agree with only using that lab.
Talk to Fara---I believe she was a patient of Jemsek, and would advise you better than I can, that this trip might not be worth taking, when he doesnt the same things as others.
What is wrong with your doctor?? On the groups Lyme list there are MANY Lyme doctors in California--I have had two other patients tell me about good expeireinces w/ 2 other doctors, and people seem to be happy with the president of ILADS, Dr. Stricker in San.. Fran.
also he was underinvestigation in 06, and cannot do any IV for more than 60 days, and I believe he is restricted in his practice with what he can do at the moment .....
i guess i'm just frustrated because i dont really have it in me to go in there and say i want testing done and soon. its the same office that has been putting my mri on hold for so long. i just want to get better.
[QUOTE]courtney misfeldt wrote:
i guess i'm just frustrated because i dont really have it in me to go in there and say i want testing done and soon. its the same office that has been putting my mri on hold for so long. i just want to get better.[/QUOTE]
You have a lot of options, you may message me for opinions and listings of physicians. I realize there are a lot of LLMD's, but there are "good ones" and "not good" ones.
One of the doctors who I think is extremely competent is in California. I'm not sure you've e-mailed me before about listings? If not, I have a lot of new additions.
[QUOTE]*Jess* wrote:
I have had two other patients tell me about good expeireinces w/ 2 other doctors, and people seem to be happy with the president of ILADS, Dr. Stricker in San.. Fran.[/QUOTE]
I was going to say the same thing. He's my first choice on the West Coast.
yes he is the first person I reccommend in Cali. Than I have 2 other doctors in CA who I have had come highly reccommended to me as well---Courtney message me if you want info...
jessica - Do you have additional notes for me to add to those two doctors or have we already added them?
Courtney---
I have talked to a few patients from California online--and through email, ironically a lot of them end up coming to New York, or somewhere up here in the Northeast...I guess they dont realize they have some pretty good doctors right in their "own backyards".
The doctor that has come most highly recommeded is Dr. Stricker, one patient said he is their version of "Dr.Jones" on the West Coast, and he has a lot of active and past patients, and it does take a while to get an appointment with him. Last I heard was 4 months. I also hear that his nurse practicioner is excellent.
Than Doctor Steve Harris- son of Igenex owner Nick Harris. I have heard he is very competent as well, and is very knowledgeable about Lyme disease. He just moved his office as well--I am not sure of the new location.
Also, Dr. Therese Yang, I have heard she is also a good Lyme doctor in Santee CA. Since you have said cost is an issue, she may be your best option.
"Her mission is to provide integrated, quality medical care to all patients, regardless of their financial resources. A dedicated, multi-talented team supports her and requires the support of the community to reach this goal. "
Dr. Yang is a non-profit office. I have been told she does an initial review that takes her about 4-12 hours, she will review all of your paperwork, records, tests, doctor notes. Then she will give you her reccommendations, and your own doctor can follow them.
You can also request to go on her wait list. She will not order testing without seeing a patient however.
I think she would be your chepeast option as a doctor, since she is non-profit. And then you can spend your money on whatever testing is not covered.
I was a patient of Jemsek for a few years. I found his bedside manner deplorable. Also, he would never, ever return phone calls (only his nurses would some were better than others). I think there are way better LLMDs out there and after 2 years of his treatment I had, personally, had no improvements what so ever.
The only good thing I can say is he'd be willing to run any and all co-infections you want.
Go to the NE if you want to travel that far and want to see an "LLMD"...
--Fara
That seems to be the general statement of a lot of his patients.
There are Ten Top Lyme doctors in the US, in my opinion-- and 9 of them are in the Northeast, one is in Cali.
I have seen 6 of those doctors I consider in the "top ten"--all run testing for every known strain of all tick borne disease at multiple labs, and also have "connections" with local doctors and labs to get things like Microscopy tests...or special biopsies done at reputable labs here in NY--not tick labs who dont have the credibility behind them---YET.
I'm using your note for the Lyme List if that's ok. Your name will not be used. It'll be attached to Dr. Jemsek's name.
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