About this Blog

~Hi, my name is Courtney. I was a full time college student, starting to be a dancer, and used to work with kids part time, living on my own until my illness disabled me.
~I became sick in 2005. I created this blog in the summer of 2006 to record my "headache" diary and to see if anyone finds it interesting.
~12/2006 I lost my job then after, failed a year of college.
~2/2007 Dx Lyme Disease with Bartonella: prescribed 8 months of oral antibiotics. I'm not even sure if I ever had the Lyme Disease.
~11/2007 The doctor took me off medicines while I was still improving but not fully recovered.
~6/2008 Dx Chiari I Malformation by a neurosurgeon in Beverly Hills.
~8/2008 Decompression and Lamenectomy helped 80% of my problems.
~2/2009 Dx Hypermobility by an Orthopedic Surgeon/School Doc: Started PT, dancing, going to school and working.
~6/2009 Started working full time as an Infant-Toddler teacher, which requires lifting. Dancing part time, maybe I'll finish school eventually...lol
~12/2009 Dx Chronic Sinusitis: Stopped dancing due to constant infections.
~2/2010 Sinus Surgery & complication: Severe Epistaxis: Became severely anemic.
~3/2010: Dx Ehlers Danlos Syndrome: by Geneticist
~4/2011: Switched jobs, now work at a Pre-K teacher for 3 and 4 year olds. Less lifting!
~5/2011: Started PT and exercising again

Saturday, July 19, 2008

surgery question

Hi, Im having decompression surgery on the 19th of August. I just want
to know what to expect. And if anyone has heard of Dr Lanman in
beverly hills. I'm nervous. I heard it was REALLY painful. How long
before I can go back to school, etc.

Monday, July 14, 2008

surgery date

My surgery is scheduled for August 19, tuesday at 7:30 in the morning. I'm nervous and I thought I was dealing with it well but I realized that I'm just stuffing my feelings instead of dealing with them. I'm worried about it and all the dangers of haviing surgery. There is some logic in my worries but I know I'm being irrational.

Someone said that I should check for EDS first because the surgery would involve fusing. But I think that I will do this surgery and if I have any problems I will check on that. But at my presurgery appointment I will bring it up along with my blood tests from a while ago that showed signs of blood clotting. But I'm not too worried about that. I hope this surgery helps.

And whats better is that the surgery is the day after my final. When the time gets closer I might end up taking the final the week before.

I have to bee off pain meds for 10 days prior so that will suck bad! Hopefully it doesnt interfere too much. When I'm in pain either I panic or I just forget anything else going on.

Thursday, July 10, 2008


So I'm having the ACM Decompression surgery. Just have to schedule it. The doctor said everything else was fine and I just have borderline Chiari. He let me ask as many questions as I wanted and I feel really comfortable around him concerning this. So thats good. Wish me luck.

Monday, July 07, 2008

head swelling

The last few days the back of my head has been hurting in two spots. Now it feels like its swelling and its really sore. I'm putting ice on it. Earlier I was having pins and needles and sharp pointing type feeling all in my thighs. It hurt more than normal.

drop attacks kinda

"Well I asked about drop attacks because I've been having something similar but not quite and wondering if people can tell me whats going on. I get really sleepy and my head falls forward. I stop in my tracks and my knees lock so I dont fall down. It lasts for about 10 minutes. Sometimes in the car but mostly when i'm walking. I think it's triggered by something because it doesn't happen when I'm just lying around all day. Usually I feel really nautious later."

Saturday, July 05, 2008

crappy night

I had a really crappy night. the fireworks had a lot of debris and it made it hard for me to breathe so i was coughing and i had a bad headache so i got a double shot iced coffee which helped alot. But what was crappy was after the show and walking to the car i started collapsing and getting dizzy and woozy in the head. It sucked alot. Now i'm feeling better. rested watched some tv and put ice on my head but i'm still nautious and i still feel lots of pressure up my spine and into my head. ugh! i missed my apt on thursday so i had to reschedule to next thursdayl.

Wednesday, July 02, 2008

doctors appointment

So tomorrow is my doctors appointment after i got my 2 MRI's today. I've been lethargic and depressed but realizing my depression is due to my lethargy. its a vicious cycle. I do not claim I don't have depression but I don't want to just give up on figuring out what my triggers are.

anyways i got to look at my mri's and i don't see any srynx's in my spine but I'm not a doctor or mri tech.
Site Meter