About this Blog

~Hi, my name is Courtney. I was a full time college student, starting to be a dancer, and used to work with kids part time, living on my own until my illness disabled me.
~I became sick in 2005. I created this blog in the summer of 2006 to record my "headache" diary and to see if anyone finds it interesting.
~12/2006 I lost my job then after, failed a year of college.
~2/2007 Dx Lyme Disease with Bartonella: prescribed 8 months of oral antibiotics. I'm not even sure if I ever had the Lyme Disease.
~11/2007 The doctor took me off medicines while I was still improving but not fully recovered.
~6/2008 Dx Chiari I Malformation by a neurosurgeon in Beverly Hills.
~8/2008 Decompression and Lamenectomy helped 80% of my problems.
~2/2009 Dx Hypermobility by an Orthopedic Surgeon/School Doc: Started PT, dancing, going to school and working.
~6/2009 Started working full time as an Infant-Toddler teacher, which requires lifting. Dancing part time, maybe I'll finish school eventually...lol
~12/2009 Dx Chronic Sinusitis: Stopped dancing due to constant infections.
~2/2010 Sinus Surgery & complication: Severe Epistaxis: Became severely anemic.
~3/2010: Dx Ehlers Danlos Syndrome: by Geneticist
~4/2011: Switched jobs, now work at a Pre-K teacher for 3 and 4 year olds. Less lifting!
~5/2011: Started PT and exercising again

Sunday, August 09, 2009


today i walked about 1/4 mile with a gallon of groceries in each hand. stopped many times but finally got home. headache rest weakness disoriented, ice pain medicine sleep. i managed to eat and put out some flowers that i got. its 4 hours later and im still slightly disoriented and weak. note to self: dont exhaust energy and strength on needless things. i could have gone to the grocery store with my mom later in the day.

other than today things are great. especially since now if i am in any pain i know where it comes from and how to handle it best. that eases most of my problems.

Thursday, June 04, 2009


so its been a few months since my last post. thats probably a good sign. I am doing well, except i had to move and find a new job and my car broke down and my bike was stolen. But now im walking/busing it to work which is pretty much down the street and i dont have to pay gas or insurance or car maintnence and i love where i live and who i live with. anyways, ask far as health stuff goes, i got sick my second week on the job with bronchitis and a bad cold. took the meds and felt better. for the last few days my chest has felt really tight so i went to the doctor and had a breathing treatment. no asthma or pneumonia. and i got an inhaler.

my back and neck pain is on and off and my coworker is always wondering if i can "handle" the job because i sigh alot throughout the day and rest my back as much as possible. she doesnt understand obviously but im being patient. walking helps my back and so does ice and heat, rest etc. as well as being with friends. ive stopped PT again this time cuz i cant get there and I am broke and still owe them 65 dollars. sucks.

not sure what helped tonight, the 2 cheeseburgers, the double shot latte, or the 3 doses of albuteral in a 3 hour period. we shall see. Im considering trying the gluten free diet just to see what happens. But it's still in the air.

Monday, April 13, 2009

i have to just laugh

"i can cry about it or just laugh at those who cant scratch the middle of their back..." haha.

the pain sucks. hypermobility or eds3 sucks. my spine feels like a collapsing accordion. i have to just laugh at it though, cuz im gonna deal with it the rest of my life...

Monday, April 06, 2009

Drs....aye aye aye

I went to the doctor here at my school. He was an orthopedic surgeon. I went to get a simple PT referral so insurance can pay for it. He had an assistant and was moving my arms around and knees and thumbs etc to show him how I "move" and "sublux". Same thing happened at PT last Thursday. Hopefully this helps, PT. My mom knows a holistic healer type person who sounds interesting. I might try that too :)

Thursday, March 26, 2009

shoulder impingement

ah yes my hypermobile shoulders have now gotten the best of me. two days ago my shoulders were starting to hurt. later my head hurt as i was driving to work. i thought, here comes my migraine (in my shoulders) i dont know what i was thinking. anyways i would get bursts of pain shooting around my shoulders and also in my head. it was weird. i took medicine, i also put ice on my back. the next day in ballet i asked my teacher about the pain, she said it probably was from tense muscles in my neck/shoulder area. i sat out half the session putting icy-hot on my shoulders. i missed classes that day so i could go get a massage. the pain was that bad. though the massage felt good the pain still lasted through the night. i tried licorice tea as well as ice and heat packs. this morning i went to school, i was in pain. i thought i would miss my midterm because the pain hurt i couldn't think straight. i went to the health center at school and they said i would have to come back tomorrow. I had my therapy session and was still in pain. I decided to go to urgent care. now i have nausea as well. the UC doctor sent me to the ER just in case... i dont really know why. While at the ER the doctor did "excessive testing" as he put it. I had x-rays, a ct-scan of my lungs, and four viles of blood drawn. all to find out that it was impingement.

anyways this is a secondary condition to shoulder instability. yikes. now i definitely need physical therapy. im on it!

Wednesday, March 18, 2009


its funny how health conditions can produce psychological problems. if i didnt know better my nightmare would still be terrifying me now and probably for a few days. i dreamt i was in an old battered house in simi valley and i was getting some old jewelry. i saw a figure outside and i went to yell at it. the figure ran inside, it happened to be a girl. but a man ran inside as well. instead of running after the girl, now i was running from the man. freaky. anyways i woke up and i was feeling hot. my hands and feet hurt. i feel woozy. i know my salt level is low. i eat some olives and drink some water. i get my blood circulating by doing a few stretches and i rub my hands and feet with some cream or lotion. i set the temperature in the house down a few notches. when i lay back down i will raise my feet up a little so that the blood will get to my brain better. now i have sweet dreams.

anyways, my body has been feeling good. the only thing bothering me this week is my back and shoulders being so sore that i end up getting migraines. and ive been lacking quality sleep. im moving though soon to my own room so i can have some solace. i need to add more to that solace and get my finances straightened out and have a financial plan so that i never have to freak out about rent or bills. ie: maybe i have to get a new job cuz my job isnt giving me enough hours. you do what you have to do.

Sunday, February 22, 2009

body pain

this morning i wake feeling sad/dull. then i survey my body and notice my whole body hurts, pins and needles. my head hurts too. its mild but enough to ruin the happy me. its time to take this seriously. ive been avoiding doing anything really health related since the beginning of the year for a couple of reasons. ive been through some drastic life changes, and because i was overjoyed with the ability to go to school, work, and have a social life. its changing for me again, i see.

Saturday, February 21, 2009

to be honest

i feel like im getting worse. my eyes have been hurting for 3-4 weeks now, ive tried lots of things to help it and it seems like its only improving slightly. now tonight my upper spine feels sensitive. i'm trying to figure out the cause, if its me or what. i dont know. im going to keep track of my symptoms daily for now on.

Friday, January 23, 2009

stress and pain

I'm really stressed out. I have a job and going to school full time. I just moved into the dorms. I've been lifting too much stuff walking too hard and fast and going going all day long. I've had a head cold the last week. And my head and shoulders have been hurting a lot llately. I don't know what to do because I need to be a full time student to live here and I do not want to move again. I also need to get more hours at work. When I'm up and about it doesn't hurt as bad. I'm going to try my dance class tomorrow I'm just worried it will be too much for my back. At least the teacher was my teacher before and when I got sick so she's understanding. I also need to start physical therapy again. And on top of all that I need to pay my way past due bills and clean up some odds and ends at the old place. I'm just hoping that when my stress lessens then my body will feel better. I worry that I'm either doing too much or I'm getting worse. Both of those are bad cuz I'm on my own now and I have to do all that. I can't afford not to. I also can't afford to get worse. I drove a half hour to work every day and it's bad posture the whole time. At least I'm away from people stressors. Maybe I'll start combating one stressor at a time and see if that helps.

Friday, January 02, 2009

doing good

a long awaited update yes it is.

im doing good. I am getting pressure headaches and migraines but they are manageable. I can dance and work and go to school and clean dishes and cook and do laundry. but I need to pace myself. i'm sleeping well and refreshed. i hiked like a mile and a half last week.
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