If I got better what would I do? This is a hard thing to think about for a couple of reasons. What if I don't get better. If I don't get better I'd like time to think about what I should do with my life, how long I will live, and go through the grieving process early. I'm that kind of person. I like to get things done fast so I can move on and not waste another day...Another question...How old will I be when I get better? Will I be fully better or will I have a number of difficulties after this disease? But I think it's good to note what I would do if I did get better because I don't want to get better and forget everything I learned about life.
Okay so I will start a list of things I would do if I got better:
1) Dance, learn dancing, not competitive or stressful, but for fun.
2) Adopt
3) Travel to third world countries and help distribute food or clothing.
4) Finish a drawing and a color theory class so I can paint better.
5) remember that maintaining a beautiful home for it's own sake is not that important to me. (i forget sometimes)
6) Advocate for chronic illness and infections. and spread good information and uplifting information about them.
Would I continue with school? Why? Should I continue with school? Why? I dunno what to do...
What would you do?
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1 year ago
7 comments:
Hi girlie! We should really get together. I was diagnosed this week with Lupus (a chronic autoimmune disease) and now life is full of specialists, medicines, tests and pain. I think we should support one another :) I love you and will pray for you!
I choose not to accept or live with "IF I get better". The phrase is WHEN I get better. Not only is it a good thing to say and believe, but actually believing that one day you will be better is good for your mind and body (there's a lot of Indian medicine that dwells on the mind-body connection, especially about believing you'll get better and find healing).
Still, if I somehow never fully beat this disease, I'd pursue some sort of further education at my leisure, then probably try to get a job as a flintlock gunsmith at Colonial Williamsburg. Woodworking doesn't take tons of energy, it's what's kept me sane the last several years, and I could make a living with it if I had to. Pay wouldn't be fabulous, but I've never wanted a super high-paying job anyway... I'd rather live in a log cabin than a mansion (and a log cabin I'd have to live in on gunsmith salary ;-)). I'd rather NOT making a living out of it, simply because I'd rather be outdoors in the wilderness sharing my knowledge and teaching others about nature.
So, WHEN I get better (regardless of how old I may be...), I plan on pursuing further education with a major of outdoor education with biology or environmental sciences as a minor. Once done with that, I'll probably teach for a bit, save up enough money to refit the family boat or buy a seaworthy boat of my own, then sail around the world for a few years. It's been a dream of mine for as long as I can remember, and It's going to happen.
In the meantime, I've had to learn to live for the small things in life, as we all have. I've only recently begun to think about stepping back into the world... having been absent from it for 5 and a half years. I don't know where things are going to take me, but I DO know that I'll beat this... stay positive guys, you have a disease, the disease doesn't have you. It may knock you down, but you can knock it right back. It's never a lost cause, even when all you want to do is crawl into a ball and disappear.
I just reread all of that and thought to myself "when I was feeling my worst, I'd feel like shouting at the person who typed all that 'stay positive' crap"... I nearly deleted it, but some of you might find it encouraging and helpful.
-A herxing Eric... Will be better when it wears off tomorrow or Saturday.
1. Move back to New York
2. Return to school
3. Return to work
4. Travel to New Hampshire on holidays in order to finish my beloved camping and hiking trips. THIS time making sure to perform tick checks (now that's funk!)
5. Bang my girlfriend and then kill Chris Griffin!
When I get better I'll,
1: ??
2: ??
3: ??
4: ??
I just don't know where I belong at this point. There are so many directions, -- so many in-fact, that life is a bit like having Satelite TV with 800 stations. I can't seem to pick just one. :(
Metallic Blue wrote:
When I get better I'll,
1: ??
2: ??
3: ??
4: ??
I just don't know where I belong at this point. There are so many directions, -- so many in-fact, that life is a bit like having Satelite TV with 800 stations. I can't seem to pick just one. :(
I can see you as a male stripper
I think Monica & Katie can see it too. Oh and not recognizing my Family Guy joke FTL
Finish school, own instead of rent, travel more, take up running again.
I plan on doing these things even if I don't get better. It will just take a little longer to get them done if I'm still sick.
I agree with Eric's theory...of its "WHEN" I get better....not "IF" I get better...
For me, this has been going on so long, and I was so young, its hard to remember sometimes what life would be like without Lyme disease. Where would I be in life? What would I be doing? Who would my friends be? Where would we be living? ....But living your life as "what ifs" is really the wrong way to do it when you're sick w/ a Chronic disease, where the outcome is unpredictable.
You just never know what tomorrow could bring with this disease, there are so many questions I have, and so many answers not known---or the answers are known, but the doctors feel that telling me, wouldn't make me any better anyway.
My wants for the future are: To be able to walk again, and be cured--not just a "remmisission"----I have had a "remission" after my first Lyme infection---and then 2 years later...it came back 10x worse, and took the use of both legs with it this time...It's a "tease" to get 60% or so better...only to have it taken away....so no more remmission....I want a CURE. (But I would settle for another remission lol)
Than I would want to:
1) Travel with my family to Italy and the rest of Europe
2) Go to Columbia University College of Physicians and Surgeons
3) Become a pediatrician--subspecialty--LLMD
4) Get married
5) Have kids, and since I am such a great pediatrician LLMD if they're born w/ Lyme I can just treat them myself.
6) Find the cure to Lyme! :)
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