About this Blog

~Hi, my name is Courtney. I was a full time college student, starting to be a dancer, and used to work with kids part time, living on my own until my illness disabled me.
~I became sick in 2005. I created this blog in the summer of 2006 to record my "headache" diary and to see if anyone finds it interesting.
~12/2006 I lost my job then after, failed a year of college.
~2/2007 Dx Lyme Disease with Bartonella: prescribed 8 months of oral antibiotics. I'm not even sure if I ever had the Lyme Disease.
~11/2007 The doctor took me off medicines while I was still improving but not fully recovered.
~6/2008 Dx Chiari I Malformation by a neurosurgeon in Beverly Hills.
~8/2008 Decompression and Lamenectomy helped 80% of my problems.
~2/2009 Dx Hypermobility by an Orthopedic Surgeon/School Doc: Started PT, dancing, going to school and working.
~6/2009 Started working full time as an Infant-Toddler teacher, which requires lifting. Dancing part time, maybe I'll finish school eventually...lol
~12/2009 Dx Chronic Sinusitis: Stopped dancing due to constant infections.
~2/2010 Sinus Surgery & complication: Severe Epistaxis: Became severely anemic.
~3/2010: Dx Ehlers Danlos Syndrome: by Geneticist
~4/2011: Switched jobs, now work at a Pre-K teacher for 3 and 4 year olds. Less lifting!
~5/2011: Started PT and exercising again
Showing posts with label spasms. Show all posts
Showing posts with label spasms. Show all posts

Sunday, May 11, 2008

happy update

i noticed that my blogs were depressing so I wanted to let everyone know the good things coming out of this. I'm slowly able to to more and more. My mom and I are trading Saturdays and going to each others home to help clean/organize. i had gone to the ER the first week i started work and the doc took an xray of my lower spine which showed that the only thing noticeable was that my tailbone was straight instead of curved. The doctor said I have bad back spasms though and prescribed muscle relaxers and pain medicine which I was not able to afford. but all in all I'm doing better. I'm trying to relax my back as much as possible, not rush etc.

We still need insurance. Probably going to go with student health insurance. the safe route. but not sure yet. we'll see. any suggestions?

Thursday, May 08, 2008

post-polio syndrome?


"Partly due to association with past epidemics there has long been hypotheses linking ME/CFS with polio. From the very first well documented epidemic in 1934 (labelled Atypical poliomyelitis) the question has arisen concerning the relationship between an infection and immnunization. Many ME patients prior to 1956 suffered a paralytic association along with typical ME/CFS symptoms, however post 1956 ME/CFS patients have been spared paralysis, and it was hypothesised that polio immunization altered the symptoms common in earlier epidemics. Despite polio having been first described in 1881 there was no mention of PPS or even named until about 1979, the same time ME/CFS catapulted into public attention, and the rise in numbers of PPS closely parallels the rise in ME/CFS. It has also been noted that patients who had previously fallen ill with Akureyri disease (a synonym for ME/CFS) in 1948, and the general population of that particular area, of Iceland failed to succumb to the polio epidemic that swept that country at the time. Which raised the questions; are many ME/CFS patients simply PPS patients who had contracted a subclinical case of polio years earlier or is ME/CFS in subgroups, a poliomyelitis variant? [5] [6] [7]"


Reasons I could have had a mild case of wild-poliovirus
#1) I did not have a polio booster shot prior to my trip to Ethiopia
#2) There was an outbreak coming from Nigeria around the time I was in Ethiopia
#3) I had diarrhea upon returning for 2 weeks.
#4) One other person on my trip came back with symptoms including mild paralysis on one side
#5) my main problems are back spasms, joint pain, dysautonomia like symptoms, hypoglycemic like symptoms, fatigue

Tuesday, August 14, 2007

the last two weeks

i went to the doc and he told me to take double my meds. as a result i've had an overall increase in symptoms. i had some marital problems that did get resolved but i hurt my neck in the process. so i started going to the chiropractor at my school which is really cheap. hes done this combo therapy on my neck and slowly getting my neck and back to a place that he can start doing other stuff. its been helpful. but the last few days have been pretty bad. mentally i couldnt take the double meds i was getting confused and couldnt think straight and i still cant but it was so bad. and felt weak and ill and i still do. my hands and feet hurt alot. and this other thing i'm not sure is related whatsoever but my nipples hurt. i decided to drop any dance class and just take the 3 communication disorder classes. i wont be able to handle it at all. maybe i need to move on. its sad. the reason is i was enrolled in a 3 unit intermediate ballet class that i had last semester which i really like the teacher and she would most likely be lenient on me and stuff but i'm afraid i wont be able to catch up at all and it would be too much too fast. if only she had an easier class. but the other dance teacher seems kinda tough. any absence or late or non dress counts. and they are each 1 unit so i would have to take 3 and thats too much. with papers and stuff not worth it.

i really want a maid to come like once a month. i think it would help me a great deal. my husband and i are going to get a car for me. maybe a 98-99 jaguar xj6 or something similar. if we take good care of it in about 20 years it would be a classic. which is always good. we just have to be committed to the repairs. but yeah i need a car to go to school even if its a block away. i'm just too sick. also the doc approved me for a temporary handicapped parking thing, now if i can only find the paperwork he sent me...aye aye aye lyme brain!!!!
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