About this Blog

~Hi, my name is Courtney. I was a full time college student, starting to be a dancer, and used to work with kids part time, living on my own until my illness disabled me.
~I became sick in 2005. I created this blog in the summer of 2006 to record my "headache" diary and to see if anyone finds it interesting.
~12/2006 I lost my job then after, failed a year of college.
~2/2007 Dx Lyme Disease with Bartonella: prescribed 8 months of oral antibiotics. I'm not even sure if I ever had the Lyme Disease.
~11/2007 The doctor took me off medicines while I was still improving but not fully recovered.
~6/2008 Dx Chiari I Malformation by a neurosurgeon in Beverly Hills.
~8/2008 Decompression and Lamenectomy helped 80% of my problems.
~2/2009 Dx Hypermobility by an Orthopedic Surgeon/School Doc: Started PT, dancing, going to school and working.
~6/2009 Started working full time as an Infant-Toddler teacher, which requires lifting. Dancing part time, maybe I'll finish school eventually...lol
~12/2009 Dx Chronic Sinusitis: Stopped dancing due to constant infections.
~2/2010 Sinus Surgery & complication: Severe Epistaxis: Became severely anemic.
~3/2010: Dx Ehlers Danlos Syndrome: by Geneticist
~4/2011: Switched jobs, now work at a Pre-K teacher for 3 and 4 year olds. Less lifting!
~5/2011: Started PT and exercising again

Sunday, October 29, 2006

migraine go away

yesterday i was a little nautious after lunch. and it got worse. i rested in the evening and didnt want to eat. i went to a dance show and the lights were hurting me. and i was like thinking oh now i'm gonna be debilitated the rest of the night. so my friend and i were sitting outside after the show and she started patting her chest. she said that she heard it help you keep warm when you are cold. so i did it for fun cuz i thought she was funny and it kept me feeling better. later around 10:30 i had a taco and some sips of dr.pepper. and i felt better. even later i was feeling bad again but then i was too tired to notice.

Thursday, October 26, 2006

Symptoms of Hypothyroidism

The Following quote is from ANSWERS.COM
"For some people, even if the TSH level is normal, or even in some bases, low normal, there may still be a situation where one is functionally hypothyroid, due to the body's inability to move convert circulating T4 thyroid hormone into the active T3 hormone at the cellular level, inadequate T3 hormone levels in general, or other factors. Inability to properly convert T4 to T3 can also result in fluctuating TSH, as the system struggles to keep balancing an out of whack T4 and T3 level, sending TSH levels up and down to compensate. For these patients, supplemental T3 may help them to feel well."

And the more I research the more I find out. this info i got from mayoclinic.com: Well, low TSH level can come from hypopituitarism in the pituitary gland. It can affect one or some of the hormones it secretes. And it can also be treated by several medications. one medication is Prednisone which I did take over the summer and felt soo much better. I tried to get my doctor to give me more but he wouldnt because its not good to stay on it. I still want an MRI because it can image the neck and spine in more detail, sometimes hypopituitarism can be caused by a tumor in the pituitary gland.

"Hypothyroidism due to low pituitary function: TSH-->Low T4-->Low T3-->Low(but to the right of T4) Temperature Pattern-->Low and very stable Commentary-->Looks just like primary hypothyroidism but TSH is low. We know there is demand because of high conversion of T4 to T3 but the TSH doesn’t rise to help T4 production." ~http://www.drrind.com/thyroidscalematrix.asp

Slowed speech and a hoarse, breaking voice. Deepening of the voice can also be noticed.
Impaired memory
**Impaired cognitive function (brain fog)
Urticaria (hives)
**Migraine headache
**Increased sensitivity to heat and cold
A slow heart rate with ECG changes including low voltage signals. Diminished cardiac output and decreased contractility.
Pericardial effusions may occur.
Sluggish reflexes
Depression (especially in the elderly)
Anemia caused by impaired hemoglobin synthesis (decreased EPO levels), impaired intestinal iron and folate absorption or B12 deficiency from pernicious anemia
Slowed metabolism
**Fatigue (physical)
**anxiety/panic attacks
Choking sensation or difficulty swallowing
Shortness of breath with a shallow and slow respiratory pattern.
Impaired ventilatory responses to hypercapnia and hypoxia.
**Increased need for sleep
**Muscle cramps and joint pain
**Brittle fingernails
**Abnormal menstrual cycles

Wednesday, October 25, 2006

my cold is back

i'm coughing alot again and now FEEL sick. yuck. last night i had #3. But I went to dinner with my family and was able to eat a little. salad bread and drink some soda.

Tuesday, October 24, 2006

irregular periods?

well i got my blood test results for my irregular periods and everything is is normal range. But I did notice some lower results in some areas: follicle stimulating hormone, luteinizing hormone, Thyroxine, thyrotropin, DGEA SO4, testosterone level. I think it makes sense because it means I just have a "lazy" period. But I wonder how that affects the rest of me...

cold again

so i threw up this morning because of all the gunk i've been coughing up. i didnt go to dance class, instead i went to my boyfriends work, hes a waiter. and i didn't want anything to eat. i thought the sprite would help but it didnt so i called off work. so i was reading today something about allergies and how if its making you more susseptable to colds then you should take vitamins. so i think i'm going to start that again to see what happens. i really do love my job, so its not that i hate going there. and i love my classes, i find them interesting, except karate. so i dunno. and money isnt a problem anymore. i started to paint again so i dont know whats up.

Friday, October 20, 2006


neurofirbromayalsis???? what??? so today i asked this girl to go to my birthday dinner thing tonight and she said she didnt drive so she couldnt. i asked her why and she told me she had this thing....it made her pass out and get dizzy and have headaches....sounds like me! but she left class early and i didnt have the chance to ask her any more questions. now i really want to get an MRI. i looked it up and thats the only real test for it.

anyways, i was able to see the board fine and all then i started to get nautious again but only slightly and my eyesight was a little blurry and had to use my glasses. i'm starting to notice these types of things. like what happens and why and at what time, more specific.

i'm getting over my cold but still not well enough.
but i'm happy ;-)

Thursday, October 19, 2006

neuro exam...

i went to the doctor at my school for a second opinion on my symptoms. basically he sees everything as normal from his tests but suggests i get some imaging done with a neurologist. so we'll see if i can get a new doctor to actually send me to one to get the exam done...

the cold

I've been battling the cold since friday. today and yesterday i've been out sick. no school, no work. and today is my birthday. i have a stye in my left eye. theres always something with me. so i wonder if i'll even pass my karate class. i was out last week because of my leg. the week before on wednesday, i was too tired so i didnt go. and now this week. hopefully i can make it up. on the plus side, my financial aid is enough to quit work. so i'll do that pretty soon.

Friday, October 13, 2006


so today i made a big mistake. i drank a triple shot expresso pumpkin spice late and ate a maple donut for breakfast. and i waited until before 12 to eat part of a sandwich, not a good idea with someone who gets migraines. i started feeling nautious and uneasy. i had to cancel my lunch date with a friend to go home and try and make myself better. well, hapy to say i didn't get a headache, just had to relax, sleep a little between the rides on the bus, and have a nice bath. i'm all better, but i shouldnt do too much still.

other than that.... my leg hurting was a pinched nerve in my lower back. thats gone, thank the chiropractor.

feeling good other than that.

Tuesday, October 10, 2006

feeling good

i've been feeling good lately. thought my allergies are kicking up again because I havent been able to see the allergist for my shots, no car. and i think i tore something in my leg from biking. but all is well!

Saturday, October 07, 2006

feeling good

I'm feeling pretty good today. i actually slept some last night and let myself sleep in. That took care of the lack of sleep from the week.
sometimes i wonder if i want t0 be sick cuz today i started to feel sorry for myself. or is it that i get so used to knowing that i'm sick and i want to do more things and that stresses me out?
but going back to my previous times of feeling like absolute crap i know that i dont make it up.

i think i'm going to keep saturdays a school free day so i can have some rest. and try and take a few naps during the week days.

Friday, October 06, 2006


so i've been extreemly tired the last few days, waking up wanting to sleep because it actually feels like i didnt sleep at all. i go to bed at 10 pm and wake up at 7am according to my alarm clock. i wake up achy and have weird dreams. Last night it was about my wedding and how my mom said it was too loud so we had to stop the wedding and all the kids were tired so they had to sleep. it was weird. so we moved it to this boat house that could only fit 100 people tops, i went downstairs and it was all gross with the owners down there drinking beer and outside was a trash dump. on the way back upstairs the nails were comming out of the floor and we knew that it was going to fall down if there was one person past 100 people on there. kinda weird.
anyways, yesterday i was falling asleep in my dance class of all places. i felt a little nautious at work and almost fainted, but it went away.
Do you ever feel like there is just something wrong? thats how i feel. i really need an MRI with all these neurological things happening, but because i had a clear CT Scan I don't think my doctor will do it. Lame!

Wednesday, October 04, 2006


"I was feeling good lately. Working with the kids well and stuff. I had 2 episodes of something since my last entry. I can't really remember what it was like but I think I was too tired both times. Yesterday I didn't eat well in the morning. I woke up late and missed my doctors apointments. I wanted Jamba Juice but ended up having pretzels and a plum. It was hard for me in dance class to do the jumps. too much workout. Later I ate Taco Bell. Then I got really hungry at work. Like low-blood-sugar hungry. I ate my chicken in the frozen food I have and drank ice water. I wasnt having a hard time except that.
During the drive home my neck burned and weakened where my head was too heavy for my neck, again. I was out of it. Steph said she was going to cook but didn't so I ate a quesadilla. I wanted to eat more and even go out to eat but then I became unreasonably tired again. I tried to do my studies and it became extreemly difficult. Writing, and focusing, and reading. It was so irritating that I threw everything out of my backback and kicked it on the floor. It's times like these that I get down because i have a desire and great want to achieve many things but I feel that my body can't get me there. I think of the future and how I can only do a limited amount of things. I can't do things that I want like the average person.
I went to bed at 9:30 completly exhausted. It was difficult to sleep. I had many vivid dreams and woke up several times. I ended waking up at 7:30 to get ready for school.
Every day it takes me a while to wake up.
My nausia has gone away but every once in a while I have to gag and geel like throwing up.
My headaches havn't been a problem recently since I've been avoiding places that might trigger them and have been trying to maintian my blood sugar. I open the windo all the way in Mike's car. Thats the only time I feel slightly nautious but it's not too bad.
I feel pretty tired right now. I drak coffee and ate a muffin. I was gonna get Jamba but it was too cold. I'm late for class again. I forgot to turn my alarm on.
I also feel forgetful. Like my attention span is short."

Tuesday, October 03, 2006

head too heavy?

head too heavy for neck to hold up????
sometimes my neck feels weak and it is hard to keep my head up. but it is associated with the neck and shoulder pain that I think is from migraines.... does anyone feel like this? like an aura? then i get really sleepy and start to dose off randomly but i can stay up if i need to, but like if you have ever been sleepy in class and start to dose off and jolt back awake all of a sudden, that is how i feel except i could be walking around and stuff. but it goes away and stuff.
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