Feeling somewhat better

Yesterday I wrote "Finally feeling better. i havent taken my much needed nap in 3 days and im actually feeling like my vibrant self again. Now its time to be productive again"

But I did need a nap yesterday and one today. The eye pain is back and I'm still taking quite a bit of ibiprofun.  Wednesday I saw the massage therapist at Kaiser. She said my back looks like I have scoliosis. great! I guess it's a good thing I'm seeing the physcial physician. I didn't even know there was such a thing.

The good thing is I am not quite as exhausted but I don't want to jinx it.

ANA

Update: ANA is abnormal and my cortisol level is slightly high. More bloodwork was done and I have another test I need to take in order to rule out anything to do with my high cortisol level. I will know the results in 1 week. They are in fact determining if I have Lupus. (Fact: some doctors are retarded especially the rheumatologist I saw today who questioned me on my genetic disorder...I guess Ill be easy on him since it is considered a "rare" disorder.)

The Rheumy thinks its all Fibromyalgia. The GP thinks it's something "mysterious" and sent me a referral to the physical physician to check out my shoulder pain (may be a pinched nerve)

Feeling terrible.

Feeling pretty freaking terrible today. If you want can you please pray for me?


It's a sad day for me because I had to let my supervisors know what's going on. I've forgotten that I changed some session times and have missed them. I really hope I get better soon.


I got one test result back: erythrocyte sedimentation rate. It's in normal range, which although doesn't indicate I'm free from disease or inflammation, it most likely rules out a certain cancer that it tests for. One step closer to figuring it out.


Another test back: Creatine kinase test. It's normal which means I do not have muscle damage. okie dokie.


T4 test is back: in normal range which means it's not a thyroid problem.

New GP and tests

"I have good news. I saw my new GP today and he actually listened to my concerns. Hes taking all sorts of tests and sending me to rheumotology and cardiology. Finally gonna figure this out. I want to feel better already."


NP: "Good! Always get a doctor who listens to you!"


CW: "Yah he even wants me to wait till tomorrow to get my bloodwork done in case he wants to add more."

Sun Sensitivity

‎"(disclaimer: this is a fb vent sorry ahead of time) I hate my body seriously. 20 min in the sun ruins the rest of my night. My head feels like its boiling inside. This is no typical migraine cuz wouldnt the migraine meds kill it?"


TC: "Dehydrated, when I'm dehydrated nothing helps but a nap and tons of water"


NW: "i dont go in the sun for any exposed time, our family is full of skin cancer stay inside its better for you!"


JE: "I know!! :D put an ice pack over your eyes and eye brows, doing this will clear your vision. Heat up a rice bag and put it on your neck and upper back, relaxes the muscles therefore improving blood flow, hot shower will do the same. Another good one is get a neck massage, relaxes your tense muscles and finding the knots in your neck to relax will give it ease and try heading to bed in a dark quiet room, it will remove any of the lingering effects and the associated side effects :)"


CW: "Apparently photosensitivity is associated with lupus... Hmmm..."


CW: "Also i dont know anyone else who gets this bad a reaction from the sun...."


SG: "I was diagnosed with lupus, its extremely hard to diagnose and in most cases not all is accompanied by a skin rash of sorts the meds suck and made me feel worse then the lupus so though it would help to get a diagnoses and you can have a normal day to day life I really hope you don't have it lady and what ever is wrong is fixable with more tolerable meds"


SG: "If hot enough the sun makes me nauseous and screws with my breathing and eyesight but nothing like you are experiencing"

CW: "It doesnt have to be hot. cuz i can handle the heat ok if i stay in the shade."

AS: "I have been having a lot of headaches too lately..I will have to go get checked out..when I get them they get bad the one I got tonight made me throw up...usually I just sleep and they go away"

SN: "Sun does that to me too. I get a headache almost right away in the sun >_< Then you get dizzy and weak. Then nauseous and then you want to jump off the roof of your apt b/c you feel like you are getting slammed in the temple and/or forehead with one of those spike balls lit on fire. It sucks. I'm sorry :( Never go outside w/o sunglasses. The moment the sun hits your eyes it is just a matter of time until the migraine comes."

Vitamin D Deficiency

"Blood tests show I have a Vitamin D deficiency. But I can't find any substantial or sound information on this and it's effects."


SM:"There is a thought that MS can be caused by vitamin D deficiency. Take lots of supplements!"


SR: "My friend (who also has migraines) was also vit D deficient. She noticed a big diff when she started taking the presciption Vit D"


LF: "drinking milk is helpful, there are some brands that have additional vitamin D :)"


CW: "apparently the effects of low vit d levels have more to do with low calcium because calcium needs vit d to absorb properly."


MF: " I have the same thing and low Iron. It's a typical thyroid issue. Ive been tolled that I should take fish oil but don't know why"


MP: "we are all taking a wonderful D3 supplement. It has helped with asthma and that "down" feeling. www.maximumD3.com"

DS: "I wouldn't be taking vitamin d supplements over the counter. Most vitamins if you take an excessive amount, the body will just excrete what it does not need. Vitamin D is different and gets stored in the body and eventually can get to a toxic level."


AK: "Really. I did. I take liquid vita D so it will absorb in my body. By day three my depression was gone."


PM: "Really. I did. I take liquid vita D so it will absorb in my body. By day three my depression was gone."


CW: "I go in the sun for 20 minutes and i wind up with a migraine."


SM: "Drink milk and wear a hat... sorry its been so hard."


SN: "Vitamin D is super important. I take a supplement for D3. Anything that impacts the blood is something to watch out for. Don't take too much of any supplement but there are some things that you should take a vitamin for. I take a multi, D3 and Omega-3. Not a fish oil though. One b/c I'm vegan and 2 b/c when my Gma and mom both got cancer, their Oncologist said NO FISH OIL! Try enriched soy milk too. It has all the vitamins milk has and more. I like the vanilla."

Lymph nodes

"Okay: so as far as my illness stuff is concerned heres what i know. The lymph nodes in my neck are pretty swollen. However all my vitals and cbc counts are good. My TSH level is health and I dont have any liver issues or mono. From what Ive read, I should tak e it easy and rest. If my symptoms dont improve in 2 weeks I'll need to get another checkup cuz it could be something more. In the case that it is serious it hasnt become serious yet. If you have any tips I could use it cuz my neck feels like its on fire. (stayin positive :)"


"ive had a severe increase in migraines too. most i would get was 3 a month now its 8 a month."


"Why would anyone want to fake throwing up and be in tremendous pain? i dont even care if it doesnt show up in labs i dont ever like feeling that sick and really dont wish it on anyone."

thyroid?

Okay its been a bad night as far as my health symptoms go. i looked up where a thryoid is and thats exactly where it feels inflamed and hurts. i had two dreams where my throat was closing and spasaming. The first dream I called 911, the second dream involved a supernautral encounter in a haunted house. LOL our bodies do weird stuff sometimes.


I told my dr today that both my grandma and great grandma have it and she let me get the test however her great tip was "just think positive thoughts".


Oh and she did a quick "depression questionairre" where all the questions about emotions were asymptomatic but the ones about physical health were very symptomatic. and i have major depression so i know thats not what im dealing with right now. she still tallied up the test and said i had "mild depression" lol. shes a nice dr but....common now.


She said my lymph nodes in my neck were really swollen but her explanation was that I'm fighting a virus. I told her my blood count was all normal and she said it must be a small virus. What the eff?! If I don't get better in one week I'm gonna push to see another dr or specialist.


My mono and liver tests came back normal now I'm waiting on my TSH test and Vitamin D.


I forgot to mention that I stopped my rounds of prednisone so my heart palpitations are near gone and my pain in my neck is back.

Here we go again

2 weeks I've been ill. Ok almost 2 weeks. It started off as what I thought was a cold. I would have a hard time sleeping at night. My chest hurts my head hurts. Sneezing etc. I had my neuro apt last thursday and everything checks out normal. (apart from the fact she was seriously concerned I would ever get a brain aneurism due to her little knowledge of EDS).
That night I had a pretty bad migraine from what I thought was being in the sun too long. It took 2 maxalts and a tylonal to let it subside. 3 am I went on a ravenous search for chocolate rice crispie treats and milk. I fell asleep at 5:30.
I had my ENT appointment the next day and he said my sinuses were looking good apart from that I was cleaning it raw... Gave me some atl gel and a round of prednisone.
My BP at the drs was 86/54 or something like that. The temp outside was 99F. I worked from 3:30-8pm. I felt horrible. I went to CVS to check my BP and it was normal.
Couldn't sleep again that night. Called out such from my work on Sat.
Taking the steroids and I'm feeling slightly better. Not sleeping well enough but better.
I'm getting these loud heartbeat feelings in my neck. There's a pain in my chest under my left breast that is radiating up back and out. My hair is falling out somewhat. I'm extremely tired during the day even with 6hrs of sleep and being awake maybe 3hrs. So I'm glad my work is a kind where I can take it easy and still do a decent job and only 2-3hrs in length. Otherwise I'd be more screwed. I'm sure there's other symptoms I'm forgetting but these are the main ones. I hope I feel better soon and I can chalk it up to done weird virus or stress. In the meantime I'm seeing my GP on Friday since I've been having vague symptoms for 4 months now. I found out a few months ago that my grandma and great grandma both have over active thyroids.