About this Blog

~Hi, my name is Courtney. I was a full time college student, starting to be a dancer, and used to work with kids part time, living on my own until my illness disabled me.
~I became sick in 2005. I created this blog in the summer of 2006 to record my "headache" diary and to see if anyone finds it interesting.
~12/2006 I lost my job then after, failed a year of college.
~2/2007 Dx Lyme Disease with Bartonella: prescribed 8 months of oral antibiotics. I'm not even sure if I ever had the Lyme Disease.
~11/2007 The doctor took me off medicines while I was still improving but not fully recovered.
~6/2008 Dx Chiari I Malformation by a neurosurgeon in Beverly Hills.
~8/2008 Decompression and Lamenectomy helped 80% of my problems.
~2/2009 Dx Hypermobility by an Orthopedic Surgeon/School Doc: Started PT, dancing, going to school and working.
~6/2009 Started working full time as an Infant-Toddler teacher, which requires lifting. Dancing part time, maybe I'll finish school eventually...lol
~12/2009 Dx Chronic Sinusitis: Stopped dancing due to constant infections.
~2/2010 Sinus Surgery & complication: Severe Epistaxis: Became severely anemic.
~3/2010: Dx Ehlers Danlos Syndrome: by Geneticist
~4/2011: Switched jobs, now work at a Pre-K teacher for 3 and 4 year olds. Less lifting!
~5/2011: Started PT and exercising again

Monday, January 15, 2007

doing stuff!

Dog/Cat Mom wrote:
"Re. losing weight on Prednisone: me, too. It made me so jittery (60 mg) that I didn't think about food, just about doing--well, whatever I needed to do: comb the dogs, wash the dogs, comb the cats, clean the house, vacuum my car, cut out/assemble quilts, work outside in the yard (but only w/long sleeves & hat), etc.

Because, on that high a dosage, my joint pain went away (I was being treated for poison oak YUCK) and I could DO things! So I DID them! This was obviously a form of exercise and I wasn't eating so, for those weeks, I did lose weight.

Thank God.

DCM"


i just read this and though "wow i wish i could do all that with no pain." this summer i took prednisone for about 10 days and i felt amazing! no pain. i was getting treated for a severe case of migraines. i wish i could feel that way again. i asked about the meds but my doc said it was addictive and has a lot of side effects.

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