About this Blog

~Hi, my name is Courtney. I was a full time college student, starting to be a dancer, and used to work with kids part time, living on my own until my illness disabled me.
~I became sick in 2005. I created this blog in the summer of 2006 to record my "headache" diary and to see if anyone finds it interesting.
~12/2006 I lost my job then after, failed a year of college.
~2/2007 Dx Lyme Disease with Bartonella: prescribed 8 months of oral antibiotics. I'm not even sure if I ever had the Lyme Disease.
~11/2007 The doctor took me off medicines while I was still improving but not fully recovered.
~6/2008 Dx Chiari I Malformation by a neurosurgeon in Beverly Hills.
~8/2008 Decompression and Lamenectomy helped 80% of my problems.
~2/2009 Dx Hypermobility by an Orthopedic Surgeon/School Doc: Started PT, dancing, going to school and working.
~6/2009 Started working full time as an Infant-Toddler teacher, which requires lifting. Dancing part time, maybe I'll finish school eventually...lol
~12/2009 Dx Chronic Sinusitis: Stopped dancing due to constant infections.
~2/2010 Sinus Surgery & complication: Severe Epistaxis: Became severely anemic.
~3/2010: Dx Ehlers Danlos Syndrome: by Geneticist
~4/2011: Switched jobs, now work at a Pre-K teacher for 3 and 4 year olds. Less lifting!
~5/2011: Started PT and exercising again

Wednesday, April 07, 2010

Things that help me:

1) Maxalt for migraines
2) Tramadol for Ehlers Danlos flare-up
3) Celexa 20mg preventative for pain, used for depression/anxiety
4) Calcium and Vitamin D for Ehlers Danlos, also gives me energy
5) Vitamin B Complex for energy
6) ice packs for Ehlers Danlos flare-up
7) heat pack for migraine and Ehlers Danlos
8) wrist, ankle, and elbow bracing for Ehlers-danlos flare-up and when I expect to use joints more
9) Blue-Emu cream for muscle pain
10) exercises: elliptical machine, swimming, dance classes all at my own pace and I stop when I feel overheated


I ordered a home ultrasound unit. I can't wait to use it!
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1 comment:

Anonymous said...

Have you been tested for POTS or orthostatic intolerance? Your symptoms sound like this could be a problem for you and many with EDS have it. I've had this (undiagnosed) for years but thought it was depression and ADD-inattentive. (POTS explains why I couldn't find my car after waiting in line at the supermarket!)

Having POTS is like doing a marathon everyday and if you are sick and tired of being sick and tired...and wonder are you sick or crazy? Get tested.

www.dinet.org
read "what causes POTS" to see the connection to EDS.

Here are the instructions for the "Poor Man's Tilt Table Test."
http://www.pediatricnetwork.org/medical/CFS/bell-commentary/oitestprocedure.htm

2:33 PM

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