About this Blog

~Hi, my name is Courtney. I was a full time college student, starting to be a dancer, and used to work with kids part time, living on my own until my illness disabled me.
~I became sick in 2005. I created this blog in the summer of 2006 to record my "headache" diary and to see if anyone finds it interesting.
~12/2006 I lost my job then after, failed a year of college.
~2/2007 Dx Lyme Disease with Bartonella: prescribed 8 months of oral antibiotics. I'm not even sure if I ever had the Lyme Disease.
~11/2007 The doctor took me off medicines while I was still improving but not fully recovered.
~6/2008 Dx Chiari I Malformation by a neurosurgeon in Beverly Hills.
~8/2008 Decompression and Lamenectomy helped 80% of my problems.
~2/2009 Dx Hypermobility by an Orthopedic Surgeon/School Doc: Started PT, dancing, going to school and working.
~6/2009 Started working full time as an Infant-Toddler teacher, which requires lifting. Dancing part time, maybe I'll finish school eventually...lol
~12/2009 Dx Chronic Sinusitis: Stopped dancing due to constant infections.
~2/2010 Sinus Surgery & complication: Severe Epistaxis: Became severely anemic.
~3/2010: Dx Ehlers Danlos Syndrome: by Geneticist
~4/2011: Switched jobs, now work at a Pre-K teacher for 3 and 4 year olds. Less lifting!
~5/2011: Started PT and exercising again

Tuesday, January 15, 2008

here we are again

so I've transitioned from the 2 weeks of joint pain so convincing that i made an appointment with a geneticist to rule out Elhers Danlos syndrome. Either way I have hyper mobility which could cause more joint pain so better treat it anyways. I think it's the same with my allergies. Yeah I have allergies and I am treating them but theres so much more to it than just allergies.

Now I transition from needing heat to needing ice. Migraines up and down my spine and head. Heat radiating from my body. Last week I had a sore throat and thought I had strep throat. Body aches, sleepy etc. But I didn't. As usual my temperature was down.

Now I wake up at 12:30 still tired and weak. I will probably do nothing all day. It's good I set up my business and school online so I can still function somewhat.

I'll be sending in all my SSI paperwork today. I hope I get it so we can pay our bills and not stay in debt and I can get the treatment I need to go back to work someday.

It's sad its been a year since I became completely disabled. Almost a year since I had to stop dancing. I thought it would be over by now. I no longer hold on tightly to my dreams, because I never know what the next day will bring.
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1 comment:

Anonymous said...

Hi. I'm Kat, and I blog at www.mirkat.net, blog.mirkat.net, and lifewithlyme.net.

I've had an absolutely horrible few months due to health problems (which I suspect you'll understand) but I'm trying to work harder on lifewithlyme.net, and to get it as active as possible with as much use and attention as possible.

I was wondering if you would like to move your blog--or blog additionally--on the site. I'm inviting multiple people I find who are bloggers and have lyme. I feel like a site where multiple people blog the most they can would be something--powerful, almost? I don't know. I just know that I'm sick, and I've been sick for a long time, and the situation and politics involved with this disease are *ridiculous*, and I'm going to do anything I can to make small steps towards changing it.

If you'd be interested, please email me at kat.snyder@gmail.com. Either way, I hope your health improves and you heal as quickly and as best as is possible.

9:18 AM

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