Had my second to last visit with the PT last Friday. We attempted to locate certain core muscles and activate them. (IE clench specific stomach muscles). Realized that even slightly activating those muscles causes tension in my neck. So, PT gave me a few light neck stretches. Basically, he is concerned about the limited range of motion in my neck. Of course he gave me stretches where I look up and I was really nervous about that. But I'm realizing that it's safe now. Its been almost 2 years since my Chiari surgery.
Last week the summer started...The temps went about 85F. Of course I got dehydrated and ended up sick. Wound up at the doctors office where they gave me IV fluids and tested me for various things. I'm A-OK. My body hates the sun...I got a heat rash on my chest and face, and my body doesn't regulate the temps correctly when it's hot out. So I have to be proactive about that. Wear loose light clothing. Stay covered up and stay out of the sun. Also stay hydrated. I bought some loose long sleeves from Old Navy, all cotton. I'm wearing shorts so my body can breathe better. Also, a desk fan. Bought several Smart Water's because other waters make me want to throw up.
My allergies have been in full swing for a month now. Taking Benadryl and Claritin like theres no tomorrow. Flonase gives me a headache so the post nasal drip is still pretty bad since I don't use it. Due to the issues related, I've thrown up a few times.
This part gets a bit graphic....
I ate lunch about 2:30, threw up 4 hours later. I noticed my lunch in it as well as food I had eaten the night before. Made me realize that I might just have that delayed gastric emptying thing that people with Ehlers Danlos sometimes have... I used to think I had heartburn or something cuz I'm nauseous pretty much every day. I just don't think it's because I have too much acid in my stomach.
When talking to others with EDS I hear a lot that our bodies don't handle some foods very well.
Bug bites from hell! lol. Something is biting me and I don't know what, but I do know that I'm really allergic to it.
I have at least nine bites on my arms at this point... Needed four benadryl to stop the terrible itching that I have all over both of my arms...If this doesn't get better by Monday I'm definitely needing to have the Dr. give me something stronger...
10 months ago