1 year ago
About this Blog
~Hi, my name is Courtney. I was a full time college student, starting to be a dancer, and used to work with kids part time, living on my own until my illness disabled me.
~I became sick in 2005. I created this blog in the summer of 2006 to record my "headache" diary and to see if anyone finds it interesting.
~12/2006 I lost my job then after, failed a year of college.
~2/2007 Dx Lyme Disease with Bartonella: prescribed 8 months of oral antibiotics. I'm not even sure if I ever had the Lyme Disease.
~11/2007 The doctor took me off medicines while I was still improving but not fully recovered.
~6/2008 Dx Chiari I Malformation by a neurosurgeon in Beverly Hills.
~8/2008 Decompression and Lamenectomy helped 80% of my problems.
~2/2009 Dx Hypermobility by an Orthopedic Surgeon/School Doc: Started PT, dancing, going to school and working.
~6/2009 Started working full time as an Infant-Toddler teacher, which requires lifting. Dancing part time, maybe I'll finish school eventually...lol
~12/2009 Dx Chronic Sinusitis: Stopped dancing due to constant infections.
~2/2010 Sinus Surgery & complication: Severe Epistaxis: Became severely anemic.
~3/2010: Dx Ehlers Danlos Syndrome: by Geneticist
~4/2011: Switched jobs, now work at a Pre-K teacher for 3 and 4 year olds. Less lifting!
~5/2011: Started PT and exercising again
~I became sick in 2005. I created this blog in the summer of 2006 to record my "headache" diary and to see if anyone finds it interesting.
~12/2006 I lost my job then after, failed a year of college.
~2/2007 Dx Lyme Disease with Bartonella: prescribed 8 months of oral antibiotics. I'm not even sure if I ever had the Lyme Disease.
~11/2007 The doctor took me off medicines while I was still improving but not fully recovered.
~6/2008 Dx Chiari I Malformation by a neurosurgeon in Beverly Hills.
~8/2008 Decompression and Lamenectomy helped 80% of my problems.
~2/2009 Dx Hypermobility by an Orthopedic Surgeon/School Doc: Started PT, dancing, going to school and working.
~6/2009 Started working full time as an Infant-Toddler teacher, which requires lifting. Dancing part time, maybe I'll finish school eventually...lol
~12/2009 Dx Chronic Sinusitis: Stopped dancing due to constant infections.
~2/2010 Sinus Surgery & complication: Severe Epistaxis: Became severely anemic.
~3/2010: Dx Ehlers Danlos Syndrome: by Geneticist
~4/2011: Switched jobs, now work at a Pre-K teacher for 3 and 4 year olds. Less lifting!
~5/2011: Started PT and exercising again
Subscribe to:
Post Comments (Atom)
4 comments:
U KNOW I HAVE HAD PERSISTANT CONSTIPATION CAUSE IM ON MEDICATION. BUT TO THE POINT THAT IT HAS EFFECTED MY JOINTS KNUCKLES AND I HAD NOT HAD BOWEL MOVEMENT IN FOUR DAYS, THEN I TOOK LAXITIVE AND HAD BOWEL MOVEMENT AND HAD PERSISTANT JOINT PAIIN IN KNUCKLES AND IN ANKLES AND IN FEET, WELL I DOUBLED UP ON LAXITIVES AND IT BLEW ME OUT AND ALMOST IMMEDIATELY MY JOINT PAIN SUBSIDED YOU SHOULD UNDERSTAND THIS IS IMPORTANT TO YOUR HEALTH
After a ton of tests I was recently been diagnosed with Elher Danlos. Kind of annoying as I am a very athletic backcountry field scientist. In order not to be a fidgiting aching lunitic I am now taking pain meds which just sucks. Curious does this gets worse, better or stays where it is? Does your dancing help or hurt? Curious if fatigue you are feeling is related to any meds or just symptoms of this "thing". Blah blah blah. Anyway, any of your experiences would be helpful.
Cheers, Bill
wstearns@vistageoscience.com
Bill,
My fatigue is due to a co-condition called POTS or dysautonomia.
Ehlers Danlos doesn't get worse or better. Lifestyle changes certainly improve quality of life and decrease pain levels overall.
Here are some of my lifestyle changes:
Move around most of the day. (I'm a preschool teacher so I'm up down and moving around as to loosen my joints and keep from unnecesary pressure on joints)
Listen to my body and go with it.
Eat healthy
Get enough rest.
Pace myself in the day.
Use braces for days I'm flaring up.
Know which pain medicines are for which kind of pain and when you really need it.
Use alternative pain reducing methods: heat, ice, ultrasound, swimming, hot tub, gentle massage..etc
Basically it comes down to knowing your body and reducing stress in your life. Improving your happiness and quality of life makes enduring this condition much much easier.
Best of luck and God bless,
Courtney
Probably you got constipated due to the kinds of medication you took, probably its one of the side effects huh? Try seeing a doctor with your joint pain and discuss about your constipation.
Post a Comment