I have great insurance. Especially since I have diagnosis established. Kaiser doctors for the most part are really helpful...
I told my primary doctor I was having more headaches. He refers me to the neurologist/headache doctor. I also get referred to PT.
I saw the neurologist this week and she referred me to the pain clinic. She had some suggestions but wanted to see what the pain clinic said.
Today I saw the doctor at the pain clinic. She was super helpful. I got prescribed Lidoderm patches for my shoulders. She wants me to wear them religiously on my shoulders every day. So far it is helping enough. Though today my spine was hurting pretty bad. Stupid EDS.
Anways, I say that my doctors are great because each of them take seriously my Chiari and Ehlers Danlos conditions. They take seriously my migraines. They take seriously my susceptibility to bleeding when I take NSAID's.
My neurologist suggested switching my depression meds to a pain prevention kind but my pain doctor said it would only help a little due to my connective tissue disorder. She knows her stuff! She said she has worked with several EDS patients.
I go in tomorrow evening for a checkup MRI to check on any signs of Chiari.
Cant wait to start physical therapy on Tuesday!
Here's what I'm taking/doing:
Calcium + Vitamin D
Blue Emu cream
I see the pain clinic Dr in two weeks. I see my neurologist in a month. I see PT next week.
9 months ago