About this Blog

~Hi, my name is Courtney. I was a full time college student, starting to be a dancer, and used to work with kids part time, living on my own until my illness disabled me.
~I became sick in 2005. I created this blog in the summer of 2006 to record my "headache" diary and to see if anyone finds it interesting.
~12/2006 I lost my job then after, failed a year of college.
~2/2007 Dx Lyme Disease with Bartonella: prescribed 8 months of oral antibiotics. I'm not even sure if I ever had the Lyme Disease.
~11/2007 The doctor took me off medicines while I was still improving but not fully recovered.
~6/2008 Dx Chiari I Malformation by a neurosurgeon in Beverly Hills.
~8/2008 Decompression and Lamenectomy helped 80% of my problems.
~2/2009 Dx Hypermobility by an Orthopedic Surgeon/School Doc: Started PT, dancing, going to school and working.
~6/2009 Started working full time as an Infant-Toddler teacher, which requires lifting. Dancing part time, maybe I'll finish school eventually...lol
~12/2009 Dx Chronic Sinusitis: Stopped dancing due to constant infections.
~2/2010 Sinus Surgery & complication: Severe Epistaxis: Became severely anemic.
~3/2010: Dx Ehlers Danlos Syndrome: by Geneticist
~4/2011: Switched jobs, now work at a Pre-K teacher for 3 and 4 year olds. Less lifting!
~5/2011: Started PT and exercising again

Monday, March 31, 2008

first aid bag

when i start school i want to have all the things i need to get through the day with me.

list the things that you would bring with you i'll start

1) instant ice packs

rantings about being sick

why do i have to deal with this crap every day? i'm only f-ing 22 for god sakes! its a constant battle dealing with symptoms! and not just symptoms but everything that comes with it! today its my ass feels numb and my body hurts and i have a headache coming on so i put an ice pack on my head and the bed is uncomfortable so its an f-ing pain to move the blankets, it takes energy to move them one by one while in pain. if you can't imagine it and you think i should just shut up and stop complaining 1)go f-yourself or 2) imagine that every action you take every slight movement in your body causes you pain or some type of bad reaction. all you want to do is curl up and die and dream of your life that you should have had! ugh!!!!!!!!!!!!!! every day i wait patiently waiting waiting waiting for it all to go away for me to finally start to get better!!!! i waited for the money to come in so i can see that crap doctor who thought he was helping but just spewed the same shit he did to the previous 60 people who came in, and the supplements he suggested didnt help! why? because he doesnt know SHIT! he says they are all up to date on all the cfs and fibro treatments! bullSHIT! i'm more up to date than he is! and i'm just a person with no college degree. ugh!

Sunday, March 30, 2008

celexa withdrawal

Symptoms of withdrawal include dizziness, tingling sensations, tiredness, vivid dreams, and irritability or poor mood.

it sucks not having insurance. its like pulling teeth to get a prescription

Saturday, March 15, 2008


hi I have not been diagnosed with chiari's but i'm pretty sure I have
chiari 1. (i have mri's and symptoms)

anyways i was wondering if anyone has bad posture and if this is
related to chiari. when i try to have good posture i can do it for a
little bit then it feels like my bones are crushing in and i can no
longer do it.

Friday, March 14, 2008

lab results

thrombotic marker panel: d-dimer test high: A negative D-dimer test result may be helpful in excluding the presence of a blood clot. A positive test, on the other hand, is not, since it can be due to many things other than thrombosis (for example liver disease, trauma, surgery, pregnancy, infection); it, therefore, does not confirm the presence of a clot. In patients who have had a clot in the past, who are known to have a clotting disorder, or in whom the physician has a high suspicion for a thrombosis, the D-dimer test is not reliable and should not be used; in these patients one should go straight to obtaining an imaging study (Doppler ultrasound, venogram, or lung scan). The D-dimer test can return to normal within a few days to a week, but that depends on how elevated the test-level was to begin with and whether there are other reasons for the level to be elevated.

C3A DESARG FRAGMENT high: Elevated C3a concentrations are found in most patients with active SLE; C3a concentrations start to rise 1-2 months before SLE flares (e.g., nephritis, pericarditis and/or cutaneous vasculitis), and are also elevated in pregnant SLE patients.4 C3a is elevated in 33% of patients with non- immune nephropathy (polycystic kidney, hydronephropathy).4 Elevated C3a is also reported in patients with rheumatoid arthritis, multiple sclerosis, Guillian-Barré syndrome, diabetes, neonatal bacterial infection, sepsis, acute respiratory distress syndrome, thermal injury and following different forms of extracorporeal circulation such as hemodialysis and cardiopulmonary bypass.4

PLASMIN ACTIVATOR: Inhibitor (PAI-1): high: Elevated levels of PAI-1 are associated with risk of throbotic stroke, myocardial infarction, venous thrombosis, diabetes and pregnancy.

Epstein Barr Early AG: (R+D) IGG, IFA: Antibody Detected: A tansient elevation in titer is seen in 85% of acute EBV infections. Although low titers may appear at a later date due to asymptomatic viral reactivation. Titers are also elevated in Burkitt's lymphoma and nasopharyngeal carcinoma.

Past Infection

CHLAMYDOPHILA NEUMONIAE C. Pneumoniae IGG high, C Pneumoniae IGA High: Past Infection:

Iron Total: High, Saturation: High

Carbon Dioxide: Low

Tuesday, March 11, 2008


hey so i think i might have EDS and Chiari's. We'll see. once i get insurance i'm seeing a geneticist.

everything hurts today. all my joints. my mid back is out and it hurts. i took a whole 5 hour energy drink today and have almost normal energy. that is sure sad.
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