so I've transitioned from the 2 weeks of joint pain so convincing that i made an appointment with a geneticist to rule out Elhers Danlos syndrome. Either way I have hyper mobility which could cause more joint pain so better treat it anyways. I think it's the same with my allergies. Yeah I have allergies and I am treating them but theres so much more to it than just allergies.
Now I transition from needing heat to needing ice. Migraines up and down my spine and head. Heat radiating from my body. Last week I had a sore throat and thought I had strep throat. Body aches, sleepy etc. But I didn't. As usual my temperature was down.
Now I wake up at 12:30 still tired and weak. I will probably do nothing all day. It's good I set up my business and school online so I can still function somewhat.
I'll be sending in all my SSI paperwork today. I hope I get it so we can pay our bills and not stay in debt and I can get the treatment I need to go back to work someday.
It's sad its been a year since I became completely disabled. Almost a year since I had to stop dancing. I thought it would be over by now. I no longer hold on tightly to my dreams, because I never know what the next day will bring.
9 months ago